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Specialised websites
EuroMuscleNet
EuroMuscleNet is an information network specifically for neuromuscular
diseases and available in all EU- languages. The information
is targeted to people involved in neuromuscular diseases and
physicians. The information includes dan bestaande tekst volgen
Specific of this site is the search by categories such as symptoms,
genetics, care and treatment. The scientific meeting room is
under construction
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Orpha.net
Orphanet is a database dedicated to information on rare diseases
and orphan drugs.
and targeted to professionals, patients, support groups,
it also provides info about orphan drugs
you can search by disease name,
poster a question or testimony or ask for further info
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Neuromuscular
Disease Center
This excellent site from the Washington University, St. Louis,
USA, gives a wealth of detailed information on all neuromuscular
diseases. It is targeted to physicians and researchers. There
is also a sector of "patient resources" which is US-
focussed. There is an alphabetical search option.
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