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Learning
This page
| a. |
will give an opportunity to learn from ideas, experiences, approaches
and activities of NMDAs and of International NMD- specific groups
(family groups) in the medico scientific area |
| b. |
will
give surveys of activities, initiatives and procedures leading
to (more) the development of medicines and devices for people
with a neuromuscular disease |
| c. |
will
give advise to emerging and young NMDAs and family groups |
| d. |
will
provide information to contribute to the empowerment of people
with a neuromuscular disease |
| e. |
will
give answers to frequent asked questions by families and patient
groups such as "How to start an NMDA", "in which
ways could we set up support structures for research in NMD",
"how does a trial work", "how is the world of
the patient organisations organized" |
How
to support Research
How is the world of
the patient organisations organised
patient organisations
patient organisations
in collaborations
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