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Learning
How
to support research?
WANDA believes
that there are various ways to support and facilitate research
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by structural money streams |
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a.
this requires governmental approach
b. a positive research climate in society
c. powerful MDAs to fundraise and to voice the interests of
their members |
2.
by availability of reliable data through patient registers,
standardized banking of patient data and well organised disease
specific parent/patientgroups
3. by promoting and supporting the work of ENMC, WMS, MDAs |
Where is Research Going? What are We Doing About it?
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