patient organisations organised

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How is the world of the patient organisations organised

NATIONAL LEVEL
Person with NMD Family with NMD
NMD-spec. gr.	NMD- association (VSN)	Genetic Alliance Pat.Org. (VSOP)
EUROPEAN LEVEL
NMD-spec. gr.	Alliance of NMD- ass. (EAMDA)	.Alliance of genetic groups (EAGS)
		Org. rare disorders (Eurordis)
		Patient Forum
		Thinktank (& farmac.ind.)
		Platf. Pat.org. Sc.& Ind. (EPPOSI)
GLOBAL LEVEL
Intern. NMD-spec gr.	Alliance of NMD-ass. (WANDA)	Int. Genetic Alliance (IGA)
		Int. Alliance Pat. Org. (IAPO)

Patents organisation in colaboration with science and industrie

NATIONAL LEVEL
Person with NMD Family with NMD
NMD-spec. gr.	NMD- association (VSN)	Genetic Alliance Pat.Org. (VSOP) Forum Genetics, health and care
EUROPEAN LEVEL
NMD-spec. gr.	Alliance of NMD- ass. (EAMDA)	Alliance of genetic groups (EAGS)
	NeuroMusc.Centre (ENMC)	Org. rare disorders (Eurordis)
	Cons.Chr.Resp.Insuff.(ECCRI)	Patient Forum
	Med. Soc. Myology (MSM)	Thinktank (& farmac.ind.)
		Platf. Pat.org. Sc.& Ind. (EPPOSI)
GLOBAL LEVEL
Intern. NMD-spec gr.	Alliance of NMD-ass. (WANDA)	Int. Genetic Alliance (IGA)
	Int. Congress NMD	Int. Alliance Pat. Org. (IAPO)
	World Muscle Soc. (WMS)	World All.Org. for ther. & prev. (WAOPBD) UNESCO, WHO

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