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Welcome on our
website
This site is an entrance to a wealth of information related to neuromuscular
disorders.
You are welcome to join us in our efforts to create awareness about
these disorders and to contribute towards prevention, effective
and safe treatment and to the reduction of the burden of these diseases.
This is the first stage of development of the site. In the second
phase the forum, the research and learning sectors will be operational.
These parts are expected to be ready beginning 2004.
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Your Country
Associations for neuromuscular diseases are
the first to check for information, support, guidance and
advise. See if there is one in your country. Click on "Your
Country" and you enter our database with over thousand
addresses from all over the world. If there is no association
in your country and you consider to start an association,
please, register and you will receive a special information
kit for this purpose, visit WANDA
or send an email.
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World
Forum
This site is a joint venture of the World Alliance (WANDA) and
the Napolitan Conte Academy. If you wish information about the
objectives and activities or about the people behind the site,
click on "World Forum".
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Neuromuscular
Diseases
Information on specific neuromuscular diseases (NMD) is abundantly
available on various websites. This information includes a description
of the disease, disease name and synonyms, clinical symptoms,
causes, genetic aspects, important publications, treatment options
etc. Click on "NMDiseases"
to find your way . |
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Family
Groups
For an increasing number of diseases there is a disease specific,
regional or international association. Have a look if there
is one in which you are interested and click on "Family
groups". This section can also be of interest for researchers
in specific neuromuscular diseases and epidemiologists. |
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Research
This sector is under construction but researchers and people
interested to contribute to research, could find their way via
the "Research"
button. Do visit the sites of ENMC, WMS, Euromusclenet and the
research sections of the major national associations for neuromuscular
diseases. |
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News
and meetings
"News and meetings"
informs you about news on therapies, conferences, publications
of special interest and about activities of the World Alliance
Conte Academy Forum. |
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Learning
The "learning" sector
provides answers to some frequent asked questions. This section
is in a developmental stage and you are welcome to contribute
or to advise us.. |
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Contact
This site is still in the first phase of development. We much
welcome your advise and comments on the "comments"
form. If you wish to contact us for more info, "contact"
provides an opportunity. |
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