International Disease Specific Groups Format

Startpage World Forum specific NMD-groups

Links:
Int. group , continental groups
Euromusclenet
(disease info, epidem., causes, genetics, current research, centers, treatment)
ENMC sma consortium
Homepages of parents/patients

Disease specific activities Spinal Muscular Atrophy

International Workshop Spinal Muscular Atrophy

Capri, Italy, April 2000

The Forum organised on behalf of WANDA and hosted by the Gaetano Conte Academy, an international workshop in Capri on Spinal Muscular Atrophy.
The workshop summarizes important contributions to the natural history of spinal muscular atrophy in 169 families with proximal spinal muscular atrophy and the molecular basis of this disease. The patients' views on future activities were addressed to the scientific community.
The workshop was the kick off for a range of activities endeavoured by WANDA and the World Forum for spinal muscular atrophy. WANDA has invited the International SMA- parental and patient group to collaboarte in the further planning of activities.
The workshop gave a brief overview of the various aspects of spinal muscular atrophy . The workshop was well attended by a large variety of specialists coming from all continents and disciplines which proved the multifocal character of spinal muscular atrophy and the interest of the scientific community.
The report was published in the Acta Myologica of May 2001, p 61 - 69)
(for full text of the report, click here)
Realisation of the workshop was possible thanks to financial support of the Gaetano Conte Academy.

International Workshop on "approaches in epidemiology of neuromuscular diseases"

Corfu, 23 May 2002.

In conjunction with the 5th Congress of Mediterranean Society of Myology the World Muscle Forum organised a workshop on "approaches in epdemiology in neuromuscular disease.
The meeting will be chaired by Prof. L. Comi (GCA) and Ysbrand Poortman (WANDA).
A report of this meeting will be available on this site and will be published in the Acta Myologica and others journals

International Workshop on translational research in neuromuscular diseases

Vancouver, 10 July 2002

There is a scientific meeting planned in July 2002 in Vancouver in conjunction with the Internatinoal Congress Neuromuscular Diseases (Xth ICNMD) on translational research for the four main neuromuscular dieases. This meeting is open for scientists working in the field ans four representatives of national NMDA as well as for representatives of international NMD- specific disease groups.
Realisation of this workshop was made possible thanks to the Canadian NMDA.