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About Wanda

World Alliance of Neuromuscular Disorder Associations

To encourage and facilitate cooperation between national associations, in order to help people with Neuromuscular Disorders and work towards a cure and eradication of the disorders.

To represent the interests of people who have Neuromuscular Disorders and their families in every nation without consideration of race, religion or political belief, so that people with the disorders are accorded care and dignity.

To facilitate swift dissemination of information on treatment and research findings which may be of use to Neuromuscular Disorder Associations around the world.

To be accepted by the World Health Organisation as the appropriate authority to be consulted, and to make suggestions, on issues affecting people who have Neuromuscular Disorders and their families, researchers and service providers.

To make effective representation, when necessary, to individual Governments to ensure they are aware of the needs of their citizens with Neuromuscular Disorders and their families.

To encourage the formation of Neuromuscular Disorder Associations in countries without existing bodies, by providing information and advice.

To develop strategies for better care and services for people with Neuromuscular Disorders and advice and support for their families.

Members of the Board of the
World Alliance of Neuromuscular Disorder Associations

President:   Piraye Serdaroglu Istanbul piraye@hotmail.com
Secretary General:   Andy Esworthy Adelaide aesworthy@bigpond.com
         
Vice Presidents: Asia Hisanobu Kaiya Kyoto nmc@gld.mmtr.or.jp
  Australia & New Zealand  -  -  -
  Europe Ysbrand Poortman Baarn ysbrand.poortman@vsn.nl
  Middle & South Africa Lee Lieth Cape Town national@mdsa.org.za
  North Africa & Middle East Ekram Abdel Salam Cairo ekab@link.net
  North America Alex Mac Kenzie Ottawa alex@mgcheo.med.uottawa.ca
  South America Mayana Zatz Buenos Aires mayazatz@ib.usp.br
         
Secretariat: WANDA GPO-box 414 Adelaide SA 5001
Australia.
info@cmdasa.au.org

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