|
To
facilitate swift dissemination of information on treatment
and research findings which may be of use to Neuromuscular
Disorder Associations around the world.
To
be accepted by the World Health Organisation as the appropriate
authority to be consulted, and to make suggestions, on issues
affecting people who have Neuromuscular Disorders and their
families, researchers and service providers.
To
make effective representation, when necessary, to individual
Governments to ensure they are aware of the needs of their
citizens with Neuromuscular Disorders and their families.
To
encourage the formation of Neuromuscular Disorder Associations
in countries without existing bodies, by providing information
and advice.
To
develop strategies for better care and services for people
with Neuromuscular Disorders and advice and support for their
families.
Members
of the Board of the
World Alliance of Neuromuscular Disorder Associations
| President: |
|
Piraye
Serdaroglu |
Istanbul |
piraye@hotmail.com
|
| Secretary
General: |
|
Andy
Esworthy |
Adelaide |
aesworthy@bigpond.com |
| |
|
|
|
|
| Vice
Presidents: |
Asia |
Hisanobu
Kaiya |
Kyoto |
nmc@gld.mmtr.or.jp |
| |
Australia
& New Zealand |
- |
- |
- |
| |
Europe |
Ysbrand
Poortman |
Baarn |
ysbrand.poortman@vsn.nl |
| |
Middle
& South Africa |
Lee
Lieth |
Cape
Town |
national@mdsa.org.za |
| |
North
Africa & Middle East |
Ekram
Abdel Salam |
Cairo |
ekab@link.net |
| |
North
America |
Alex
Mac Kenzie |
Ottawa |
alex@mgcheo.med.uottawa.ca
|
| |
South
America |
Mayana
Zatz |
Buenos
Aires |
mayazatz@ib.usp.br |
| |
|
|
|
|
| Secretariat: |
WANDA |
GPO-box
414 |
Adelaide
SA 5001
Australia. |
info@cmdasa.au.org |
Visit
Wanda
website
|